May 1, 2008

Venita goes to lunch with Sue.

Info for Yoo Kay Visit

Hello all our UK friends. I am writing this here so that it is easily accessible to all.

Jim and I are very excited about coming to Europe and having the chance to meet with some of our FDMB friends.

Itinerary

Friday, May 16. Disembark the QM2 in Southampton. The ship docks at 6am, and it takes several hours to check passengers off the ship. We have a private car that will take us to London. Our hotel is not yet firm, but looks like it might be the Novotel London West. Here's a Google Map of it. We would hope to be settled into our hotel and ready to roam about by 2pm (14:00).

Saturday May 17 is free.

Sunday May 18 we are with the tour group for part of the day. The sights they have on our itinerary are: the Houses of Parliament and Big Ben, Westminster Abbey, the Prime Minister’s Downing Street, Buckingham Palace, and the Changing of the Guard, if held.

We return from the continent late on Saturday, May 31 and already have plans to go to the Tower of London for the Ceremony of the Keys with Steve and Sabina at 22:05. Hopefully, we will have dinner beforehand. Our tickets for the Ceremony are for 6 people, so if there are 2 more who wish to join us, please let me know.

We plan to take a day trip to Bath, Lacock, and Stonehenge with a tour company on Sunday June 1. That will be an all-day trip.

On Monday, June 2, we take a private car from London to Southampton for the return ship to the US.

What Else We Would Like to Do

We would like to hook up with FDMBers and thank Elizabeth for her kind offer of her house for a visit. But we would like to stay in London to see some things that are on our "really want to do" list. Those are:

• London Eye
• Thames River Cruise (or at least a taxi up the river)
• St. Paul's Cathedral
• Tate Museum
• Tower of London
• Hyde Park

There might be other "really must do" things that our UK friends can tell us about.

So what in-London sights might FDMBers want to see?

I think it might be fun for a group to get into the same compartment on the London Eye. The Eye opens at 10:00 and departs every half hour. One must be on-site for boarding 30 minutes before the scheduled "flight time." Tickets are £15 for adults, £12 for children.

I don't want to drag folks to tourist spots they don't care to afford or see, but Hyde Park is free, as is the Tate Museum. The Tate has free guided tours at 12:00 and 15:00 on Saturdays. We could do a picnic or some other meal together.

Please comment here or on the sticky on the FDMB reunion Forum. We can have a great time together.

Surgery Anniversary/Jim's Skin Cancer

Today is the one year anniversary of my last surgery--the failed permanent implant. I do feel so much better now.

I got a call from the surgeon's office in Baltimore. The one where I am scheduled for reconstructive surgery in October. They have added another surgeon and offered to switch me to her so I could get this done faster. But I'm happy with the plan--take May in Europe and have the summer to garden. Save the nasty recuperation for the yucky time of the year.

Jim went to his dermatologist last week and she found a bit of basal cell carcinoma on his neck. She biopsied it, and will do a re-excision later this month to make sure margins are clear. He had a basal cell carcinoma a couple years back, so he gets checked annually for more of those little buggers. Basal cell is the most common, and "easiest," of the three types of skin cancer.

Flipsyde's Happy Birthday

I had never heard of this group. This song, and video, are amazing. Just....amazing.

The Party's Over!!

Jim comes home from vacation today. This week has just flown. But I enjoyed my piles and projects and honestly feel like I got quite a bit done.

I see the psychiatrist today for medicine management. I am pretty stable emotionally now, so he may reduce my visits to every 3 months. I would like to try for antidepressant reduction again in the spring/summer. Maybe after we get back from Europe.

I was visiting LifeLink to get Methyl B-12 for neuropathy (it worked well on Maxie's diabetic neuropathy), and ran into Evening Primrose Oil. I was looking for supplements that address nerve function, and saw that EPO also enhances Tamoxifen’s ability to suppress breast cancer. There has been a clinical study on it. Took a risk and ordered some; haven't spoken to the oncologist about it yet. That may do no good, though, because he poo-poos all supplements.

The fatigue and bone and muscle pain continue. I have a follow-up appt. with the endochronologist in about 3 weeks, with blood tests for calcium, PTH, and Vitamin D later this week. This has been going on for 5-6 months now. I am really going to whine to the endo this time about DOING SOMETHING!!

I met another breast cancer patient recently. She is in the Saturday yoga class, the one that is not at the cancer center. I believe she is still in chemo at this time, and is considering an autogenous (own tissue) breast reconstruction with a plastic surgeon in Philadelphia. His name is Joseph Serletti. He might be useful for a second opinion on my DIEP flap.

Jim should be limping considerably when he gets home today. He tried one round of golf, and he knees took the brunt of the twisting with the golf swing. Ouch! He also may need to "detox" from all the non-alcoholic beer he drank during the week. He said he "had to" keep up drink for drink with his golfing buddies when they went to the bars. Sigh!

Getting Warmed up for Europe

Today, we got our first tickets for our Europe trip. The Ceremony of the Keys--the traditional nightly locking up of the Tower of London. We have invited Steve [and Jock] (formerly in Sweden and now in London) and his wife Sabina to join us.

I have been browsing around for things to do during our free time in London. I am looking at the Tate Britain, which is the national gallery of British art. Its website allows you to identify pieces you want to see and to build a tour, which you then print out and take with you. Admittance to the general collection is free and they have some free guided tours. Sadly, the major Turner pieces will be out of the country at the time of our visit.

My friend Elaina, who has been to Europe, has suggested some other places for me to check out--the Rodin Museum in Paris, the British Museum, and taking a train trip to Canterbury.

Some of the hardest part of this is web pages in foreign languages and currency conversion. Babblefish and other web sites help me with those. I am so computer-dependent, I know I will be just lost without computer access on the trip. I don't know anything about wifi or computer cafes or any of that. Another problem is that for many museums, the exhibitions for May (the time we will be in Europe) are not yet listed on their websites.

If anyone has suggestions for "must do" things in Europe or for internet access, please let me know.

Jim's away for a week on a guys-only golfing trip. Jim has golfed in the past but I don't know if he'll be up for it now. But he will have fun hanging out with the guys and riding in the golf cart. There are some courses they will be playing that do allow the cart on the fairway. Otherwise, I doubt Jim could walk the course. Arthritic knees.

And I have a whole week to pamper my menopause. Can be up all hours of the night, play the TV as loud as I like, put the computer on speakers instead of headphones to listen to NPR. I am getting some things done. Yesterday, I replaced the guts in a toilet, did some painting of cabinets and shelves to go on the walls, washed venetian blinds. Jim doesn't like that kind of chaos when he's around, because I can't finish one job all at one time, and leave my tools and mess out all day and sometimes overnight. The house is almost completely tidied up from Jim's move in, and now I am working on filing stuff in my office that has collected over the past two years. And I will have to start planning for income taxes.

Sue, the woman for whom I am a chemo buddy, did really well with her first chemo session. She was scared, but once the infusion started, she calmed down and was fine. She suffered through the Neulasta bone pain, and was over all the acute side effects in about 9 days. She is getting her infusions every 3 weeks (I had mine every two), so she will have alot more "good time" between infusions than I did. Her next infusion is a week from now, and her husband will be taking her.

Treatment Buddy

This week, I get to start a new breast cancer journey of sorts. A woman from my online Wellness Community support group lives nearby, and I will be her treatment buddy. Tomorrow (Monday) she is getting her first chemo infusion.

Sue is 50, and was DX last fall with invasive ductal carcinoma in one breast. The tumor was somewhere around 1.5cm, and she had a lumpectomy. One sentinel node showed micrometastatic cancer. There was a differences of opinion about the nature and severity of the tumor, margins, and micromets, but Sue went with the pathology from two of the three labs that agreed. Had Sue taken the third opinion, she would have been facing a full axillary node dissection, which means the removal of all lymph nodes under her arm, setting her up for lymphedema, the life-long painful swelling of the affected arm.

Sue is going to the same facility that did my treatment--Helen Graham Cancer Center--although a different oncology practice. She will be getting the current standard of care which involves 4 infusions of Cytoxin and Taxotere. That likely would have been my chemo treatment if I had it now, 18 months later. The Taxotere is a new generation Taxol (which I had), and is reported to have fewer side effects, most notably the neuropathy, which I still have. Sue is very happy to avoid the Taxol. She is diabetic, and the steroids that are given with the chemo are likely to mess with that some.

Sue also will be getting a full 6 weeks of radiation. Hopefully, I can guide her through that a little better than I was guided so that she doesn't experience a bad burn.

Sue also plans to get a hysterectomy so that she can take the post-menopausal estrogen suppressing drug, instead of the pre-menopausal drug I am taking--Tamoxifen. She prefers the side effects of that other drug.

Sue has been through cancer before, most closely with her daughter, who has had leukemia since she was 12. Sue is a very strong woman, but she is understandably fearful. She has been told that the night before the first chemo is the worst, and I agree with that. It is a fear of a huge unknown. But she seems as medically and emotionally prepared as possible to face the treatment.

How about a bunch of "ATTA-GIRLS" for Sue?

I "Elfed" Us

Check this out!

Happy Holidays to All!!!

This is an interesting time for us. It's just past the one year anniversary of Jim coming home from the hospital (the day before Thanksgiving, last year) and all the memories flood in of how sick he was, how stressed I was, the help we got from Patrick (bless you so much Patrick), my constant fear of losing Jim (either physically or mentally).

But now he is healthy (well there is that osteoarthritis) and happy. I am truly looking forward to a quiet Christmas Day with a wood fire, a turkey dinner, a couple DVDs to watch (I hope there isn't a football game Jim has his heart on watching), and getting snuggly on the couch with Jim and Ennis.

I am feeling so much more internal energy and strength than I have for a long while. However, I still have that troublesome fatigue. I will be taking another "super Vitamin D" pill at the first of the month, and then get tested for my calcium/parathyroid/Vitamin D levels at the end of January.

Jim and I are finally making plans for the Europe trip we had to cancel in 2006 because of my cancer DX. It starts May 10 and ends June 8. It's a "highlights of Europe" for the aeronautically impaired.

We are taking a ship (Cunard's Queen Mary 2) from New York City to Southampton, England. After we arrive, we will head to London and pick up a guided tour. It supplies transportation, lodging, and some meals. We will be two nights or more in London, Amsterdam, Rome and Paris. We will have overnights in Rhineland, Germany; Lucerne, Switzerland; Innsbruck, Austria; Venice and Florence, Italy; and Nice, France. The tour leaves us back in London.

We are really excited about this. I have never been to Europe. Jim and I have always hoped to travel there together. This may be our last chance. Even though this is a fast-paced tour, we understand that we have physical limitations, and may have to bow out of some things. That's fine with us.

For the past week, I have been sitting a diabetic cat named Vickey. She is rehoming from NYC to TN, and the transport continued today, with me meeting Stefani (and Toonces) in Aberdeen, MD. Three more people are involved until her new owner picks her up near Roanoke, VA, and takes her back to TN.

This cat has people issues and is defensive, quick to use her growl, hiss, teeth, and claws. That makes testing her blood sugar and giving her insulin harder and harder as she becomes wary of me because of past "tussles."

Vickey's really cute, though. She's a calico Maine Coon. I have a video of her at the vet (had to get a health certificate for travel) that shows both her sweet and defensive sides:



Because of the Europe trip, my reconstructive surgery has to be pushed back. Right now, the surgeon has no openings until September. In a way, that pleases me because I would like to have the summer without having to recover from a major surgery. I need to garden.

Our best wishes to all for a grand New Year!!

Vitamin D/Shingles

The endo tests indicated I have a mild to moderate Vitamin D insufficiency. He gave me a 50,000 IU capsule to take, and I will take another in January. Follow-up blood tests at the end of January, and a re-evaluation by the Endo in mid-November.

I must say I feel (cautiously) better. I found yesterday I could balance on one foot without completely falling over. I discovered this when I was attempting the tree pose for yoga.

Jim has singles. We didn't know what they were. An adult recurrence of the chicken pox virus. He hurts, is itchy, and is fatigued. He's on an oral antiviral.

Jim did go to closing on his condo last week, and has paid me to buy into my house, so it is now OUR house. He paid me for half the equity, and we will be sharing the mortgage and utility bills, taking quite a bit of burden off me just when my savings were down to about nothing.

We have both dropped out of the cancer support groups for the time being. It was getting to be "all cancer, all the time."

I hope we will be able to get a Christmas tree this weekend.

Crap, No DX

Bye bye hope for a simple fix.

My blood and urine tests came back normal on calcium and parathyroid hormone. They have canceled the Sestamibi scan. I have asked for them to have the doctor call me.

I want to know whether the blood indicators can be transient. I also want to know if there is anything else he can do to find out why I am so fatigued and achy all the time.

Probable DX--Hyperparathyroidism

Saw the endochronologist today. Subject to more blood tests, a 24-hour urine collection and testing, and a CT scan, he believe I have primary hyperparathroidism. The solution is to remove the tumorous gland. (The tumor is "always" benign.)

$3,191 plus $14

$3,191--the cost of my chemo-induced dental work so far. Plus $14 for each tube of prescription toothpaste. The insurance company got a long appeal letter this week.

Back on Tamoxifen/Condo Sold

I re-start the Tamoxifen today, after about 2 months off. This is the estrogen suppressing medicine I was on to reduce my risk of recurrence. Now I return to severe hot flashes, insomnia, and foggy brain. Another 4 years, but I may take breaks again in the future.

Just in case my fatigue and muscle aches are from depression, the psychiatrist raised my antidepressant this week.

Jim's condo is under contract, and the financing looks good, so we are counting on it being sold as of November 30 and bringing his things over here a bit at a time. The biggest bummer for me is coordinating two fully furnished kitchens, and finding places to store the usable but presently unneeded items. Later this month, two big burly guys, friends of Jim, will bring over the furniture that we want to keep. The rest of the furniture will go to those guys or the local Cancer Federation.

Thank goodness Jim is not a pack rat (like me).

CT Scan OK

The CT scan of my lung shows no cancer. "Crappy lungs," says my onc; lots of necrotic tissue from years of smoking. Also, a small area of scarring on the top of my right lung from radiation burn.

I still feel like shit, but that's for the endochronologist to try to resolve. I am starting to think maybe the psychiatrist went too low on the antidepressants, because my symptoms (fatigue and muscle aches and pains) can be symptoms of depression. I see the psych next week.

Medical insurance denied my claim for dental adjunctive care. I am appealing. My onc dictated a "to whom it may concern" letter yesterday. The more I read about dental disease as a result of chemo, the more I wish I had been better warned in advance and taken more steps to present it. There I go, doing the "if wishes were horses" thing again.

Ennis had a dental cleaning on Monday. He was so funny when he came home. Starving, but unable to stand to eat. I should have taken a video of him.

I am reading a book about recovering from loss. The Grief Recovery Handbook: The Action Program for Moving Beyond Death, Divorce, and Other Losses by John James and Russell Friedman.

Today, I start "working" the handbook with a friend of mine who lost both her parents recently. My issue is the loss of my health.

I've read through the first few chapters, which focus on the inappropriate behaviors we have learned from childhood to deal with grief. The six pieces of misinformation the authors offer that they were taught to deal with loss are:

1. Don't feel bad.
2. Replace the loss.
3. Grieve alone.
4. Just give it time.
5. Be strong for others.
6. Keep busy.

Obviously, the authors believe those "bits of wisdom" are bullshit and should be replaced with other behaviors to appropriately grieve and move past loss in a healthy way.

I'm on the chapter that talks about how others are ill prepared to help us deal with loss. They don't know what to say; they are afraid of our feelings; they try to change the subject; they intellectualize ("he's in a better place," "she led a full life"); they don't hear us (they react to the situation, not the emotion); they don't want to talk about death.........

I'll let you know how our effort goes.

Blood Test Results

Blood draw 10/22/07

Calcium 1.25 (reference range 1.14-1.32), so this is normal.

Parathyroid hormone (PTH) 86 (reference range 15-65), high.

The onc office canceled the Zometa infusion for next week.

Still waiting for results of chest CT scan, and a call from the onc for his "take" on the blood test results. Jim is pissed at me for not being happy with the "normal" calcium results. Who can feel happy when they feel like shit?

Update: Onc called. Resolution? Wait for the endochronogist appt. (Feel crappy for another month?) Keep next week's onc appt. to get CT scan results.

Been a Long Time; Lots of News

The contractors are out. Finally. They did a beautiful job. I promise; pictures soon. We (or should I say I) still have alot of touch-up painting, organizing the mess that came from shifting storage, and decorating the rooms.

Let's see, I left off with the parathyroid hormone (PTH) test being normal. I saw the oncologist today for follow-up, and my fatigue and pain/ache symptoms are getting more severe. Adding nausea in now too.

Onc said that although my PTH tested normal, that was technically high because with my calcium level, the PTH should be zero. He had blood drawn to redo those tests. He also sent me for a chest CT scan to check for lung cancer. I'm not too concerned about that because if there's anything there, it would be fairly new. My last chest CT scan 5 months ago was clear.

Onc said he thinks it is my parathyroid. My appointment with an endochronologist is around Thanksgiving. I already am in the process of trying to get an appointment for a second opinion from a thyroidologist (a thyroid specialist) in Baltimore. I'm having trouble connecting with that office.

Onc said no to going back onto Tamoxifen (the estrogen suppressor) right now. He said that he wants to get this calcium thing taken care of first.

I went to a Wellness Community program tonight on advanced (metastatic) breast cancer. The oncologist giving the presentation, Dr. David Biggs, said something that struck home. He said that Tamoxifen does not directly cause cognitive dysfunction. However, he said it can exacerbate cognitive dysfunction in patients with clinical depression. My psychiatrist has never mentioned this, even though he knows my problems with Tamoxifen. Might he be clueless?

Oh, yes, the onc also said my bone scan showed trouble with my left temporo-mandibular joint (TMJ)--the joint where the mandible (the lower jaw) joins the temporal bone of the skull, immediately in front of the ear on each side of the head. I didn't ask for details, but that doesn't surprise me. I have had TMJ problems for years (used to wear a splint) and with this current problem with the swollen lymph node in my neck, the TMJ on that side has really flared up.

As for that lymph node, my GP also said it was inflammatory and that I should take Ibuprofen. I am, and that helps. GP also ordered an ultrasound of the neck, and there was nothing remarkable found.

I had my baseline colonoscopy about twelve days ago. The prep really made me sick. I was the queen bitch when I got to the clinic. I wanted no pleasantries at all. I was really scared about going under anesthesia and then finding a problem when I woke up. Shades of my February implant surgery.

I had the infusion of Zometa, the biphosphate, since my last post. I had trouble when the needle came out; it's like I went into shock and couldn't speak because of the intense pain. Very strange. Felt like it lasted about 2 minutes. The Zometa perked me right up, but its effects only lasted about 3 days.

A week ago Friday Jim and I drove to Baltimore to see the new plastic surgeon. It was a hard trip--long, we got lost, and there was a road closure (both directions) on Route 40. Dr. Chang is very gentle and appears very competent. My objective of another surgery was to have the scar tissue on my right side debulked and to have the solitary silicone implant on my left side removed. That seemed to me the easiest approach to return mobility to my radiation-damaged right side while making me symmetrical.

Not so, says Dr. Chang. The only way to return mobility is a skin and fatty tissue graft. Using cadaver-donated tissue is not an option. He must take skin (with the underlying fatty tissue to provide blood supply to the skin) from another part of my body. Preferably my belly. No muscle tissue will be harvested. There is a 96-97% chance that I will regain about 80% of my mobility.

To achieve symmetry, he would remove the left side implant and graft there as well. The result would be a small breast mound on both sides. The surgery will take 7 hours, followed by a 2-hour contouring surgery a few months later. The first surgery will involve 3 days in the hospital; the second is outpatient. The first surgery has an 8 week recovery period, and removes an oval-shaped piece of skin and fatty tissue from my navel to the top of my pelvic bone, from hip to hip.

I was sent home with a CD of before and after pictures to consider. I will be given contact info of a few patients with circumstances similar to mine. We scheduled the 1st surgery for May. That gives me 7 months to fatten up my tummy with nightly bowls of ice cream.

On the dental front, my dentist filed a claim for adjunctive dental care because of my cavities. I got the denial letter today. We expected that. The dentist had saved his "big guns" for an appeal. I am really glad he is working with me on this. He seems really committed to trying to push the envelope on what is dental v. medical care.

I am taking this a day at a time. Right now, there seems no way to plan my life. I have found someone (hopefully) to take over writing the book I was working on when I was diagnosed. Getting the disability checks has stopped the hemorrhaging from my savings, although it will continue to trickle down until Jim sells his condo and "buys into" the mortgage and utility payments. I also need to carve out the time (and brain) to sit down and go through the proposals the Fidelity financial planner gave me for restructuring and managing my retirement portfolio.

I think that's about it. Another dental appointment this week; hopefully the last for a couple of months. The dental work so far has been about $4,500. Jim's 67th birthday is on Friday, October 27. The cats get a vet visit that day. Ennis has been giving me trouble for about a week with his insulin. He's been getting preshot levels in the low 200s, rather than the low 100s I had gotten used to, so he may have an infection brewing. I have never started Lily on her meds for chronic renal failure (CRF) because she is so very bad about meds, won't eat wet food, and won't eat pill pockets. She also seems to have lost some weight. I did change her to a lower phosphorus dry food. Jim said he would go to the vet with me; a birthday road trip!!

Take care, all!!

Any (not just breast) Cancer Awareness Month

October is breast cancer awareness month. Yes, breast cancer holds a special place in my body (not my heart), but I want to honor all people with cancer this month.

I asked people on the FDMB to help honor family members, friends, themselves, public
figures: people living with a cancer diagnosis, people caring for people with a cancer diagnosis, people who have passed to spirit from cancer.

Here are our messages. Messages of love, of hope, of loss, of survival.

My Father, Vernon

My Father, Vernon, known to his friends as Woody, was born in 1927 and died in 1981. 54 years old.

When I was a young child, he was a vibrant, fun-loving, and intelligent man and a doting father. Life pressures and alcohol destroyed his spirit early in life and eventually estranged him from most of his family. He died of lung cancer, mestaticized to his brain, with only his 2nd wife and his older daughter to call his friends.

He is my hero because, although I had only about 5 nurturing years with him, he gave me the gifts of loving life and learning.

I have a picture but no scanner. He was handsome as a younger man, very dapper.

Linda and Chance's Parents Gerald and Hazel

My Mom passed in Sept. 1998 from lung cancer and my Dad passed in May 2003 from lung cancer. These were the hardest years of my life. They each faced death bravely. I think I've earned the right to preach a little; Please, if you smoke, please try to quit. Try again and again until it sticks. Don't do it for yourself, do it for those who love you so maybe they won't have to watch you die such a death. My parents are missed greatly.

Maximillians Person (Donna's) Family

My father, Garry, diagnosed with Renal Cell Carcinoma at age 29, passed away April 22, 1977. He was a band director and touched the lives of many, many children besides his own with a love and appreciation of music. I still occasionally run into his former students who tell me what an amazing spirit he was in life.

My Uncle Glenn (my father's brother) is a multiple cancer survivor. He is currently battling thyroid cancer and winning.

My granddaddy Bowen (my father's father) has had many types of cancer and all have been new and exciting forms and not a result of earlier cancer. (In other words, he's been *cured* many times.) He's had Melanomas, Lymphoma (twice), Prostate cancer, Colon Cancer, and currently he is battling bladder cancer. He's my hero because he has never given up. He just keeps winning.

My cousin Bonnie (on my mother's side). Was diagnosed with Renal Cell carcinoma at age 29... She is winning her battle against this awful cancer. She's fighting to stay around for her two young girls.

My Aunt Jane (Glen's wife). She has had breast cancer twice and beat it both times. Both of her sisters and her mother have also battled and won their bouts with breast cancer.

Me. I guess I can't be my own hero, but I am the poster child for early detection and regular screenings. I had melanoma (very early stage). I was diagnosed when I was 29. I got clean borders when it was removed. (Those are the two sweetest words in the world *clear borders*!!)

Foxdancer (Rilla)

My colleague Jim just passed from pancreatic cancer a few weeks ago. He was the person who adopted Shahara, the little black rescue kitty I trapped in Seattle. She was his little princess- the best adoption I'd ever made. It was very sudden. He was only in his early sixties, and had just retired about 5 months ago. He was looking forward to traveling and spending time on his boat.

My housemate's father, Henry Powell, passed from pancreatic cancer last year. He and his wife were raising their three grandchildren (housemate's sis is a drug addict). He is sorely missed by his family.

Bev and Mitsy's Father

Was 63 yrs old. Had cancerous tumors on his sides, died 1990 memorial day weekend. Scanner not working so no picture. Handsome man, tall, lean, and raised us after my mother left us.

Sandy and Jake's Family

Currently my Sister is fighting the battle of her life (ovarian cancer). She is my HERO! The picture (she is in the middle with the cowboy hat) is from a benefit for CASA (she became a child advocate a few months ago despite her illness). My Aunt lost her life to breast cancer, my Uncle to liver cancer, my Mother in Law to renal cancer. My Mother is a ovarian cancer survivor and brother non-hodgkins lymphoma survivor. I also have 3 cousins that are cancer survivors, ovarian/bladder/testicular. These family members are all my heroes.

Renee's (renegade500) Dad

My dad was diagnosed with pancreatic cancer January 6 of this year. He died on February 3, aged 75.

In the last 10 years of his life, after he retired, my dad spent his time (and money) rescuing animals in South Florida. He started a nonprofit no-kill animal rescue organization based out of Ft. Lauderdale. They take in animals a lot of other rescue groups don't - usually very sick or injured animals. They rehabilitate them and foster them until they are adopted out.

I know the group has been struggling since my dad died (in part because my dad had so much time to devote to the organization due to being retired), but they continue to do the important work.

At his funeral, a lot of people from various South Florida rescue groups, plus several veterinarians, spoke about his work and how much he will be missed in the rescue community.

Unfortunately, I don't have any digital pictures of him.

Amy'sWinston's Dad and Too Many Others

My Dad, Harry. Was diagnosed with lung cancer when he was 48. He died 2 weeks later on May 26th, 1978, when I was 10. My family says I got more of him than any of the other kids...but I was too young to remember much. They tell me I'm the most like him. I remember him always bringing me balloons, for no reason. He taught me to fish with him when I was 3 and I was his fishing buddy from then on. I don't think any of the other kids would get up go out with him at 4am to fish. I always caught more than he did! He gave me a love for Southern food. He had a wicked sense of humor and could charm anyone he met. He was a big man with a big heart, and I miss him every day.

My cousin Charlie (on Dad's side) He'd been diagnosed with brain cancer in his mid 40's with no hope. He beat it and was clean the last 5 years of his life. It came back...with a vengeance, and he lost his fight last month, passing at the age of 53.

"Mama G." Eleanor Genovese. She was diagnosed with end stage breast cancer and passed this past February after a short, but valiant fight. No matter how bad she felt, she'd greet you with a smile and a dirty joke. She was a feisty, opinionated woman who loved fiercely. She was like a mother to me for many years. "adopted' was never a designation for her, she treated me like a real daughter...all the good and bad that came with it.

Estelle Novis. She battled breast cancer for over 20 years. She lost all her sisters and aunts to breast cancer, and fought even harder on their behalf. She was also an adopted mother to me all the years I was in CT. She started as co-worker, then became my friend, then became like a mother to me. She had me over for dinner every Friday night for Shabbat (sp?) and taught me all about their Jewish traditions. She lost her battle, and left us last year.

Milly Kansteiner. She was an elder care client of mine in Virginia. What trip Milly was! At 80+ she still died her hair flaming red like Lucille Ball, wore funky little socks and earrings, and painted each room of her house a different color from a crayon box. I was with her at a routine Dr.'s appointment when she was diagnosed with liver cancer, and I had to call her son in Alaska and let them know. Through all that followed the next few months, her sons became good, close friends of mine...and I'm grateful for their friendship.

Julie and Maddie Catie

Rachel, one of my dearest friends for over 20 years. 44. Died the day of Mom's funeral. Two dear women. Big holes they've left behind. 3 uncles, 2 aunts, family friends Howard, John, Leon, gone. Now Jerry, a neighbor home with hospice. I hate cancer. Thanks for giving me a place to say it.

And to the survivors! Venita, you and Carol, and Robin, and EVERYONE else out there on this board, my friend Delores in Indiana, my friends John and Ann in FL, you're all my heroes, too, and you're all going to beat it. I am CHEERING YOU ON EVERY DAY. Every day. I wish I could write it bigger. Much love.

Sally & Simon & Sasha's Aunts and 2 Cousins

All three of my Mom's sisters were/are breast cancer survivors. The oldest sister, Aunt Lorna, passed away in 1990 from causes unrelated to cancer. My Aunt Phyllis and Aunt Wilma are both breast cancer survivors and are still living and cancer free. They both live in Nebraska so I am able to spend some time with them.

Aunt Wilma's oldest daughter, Michael, lost her battle with breast cancer at age 55. This was her second bout with cancer.

My Aunt Phyllis's oldest daughter, Chris, passed away this August after a 20 month battle with liver and pancreatic cancer. She passed 4 days before her 58th birthday. She was just a year and a half older than me and I have many wonderful memories of our childhood together. She lived in Chicago. Chris is my special Hero. She fought very hard to beat this cancer. She went through a lot of chemo, radiation and kidney dialysis. All with a smile on her face and a goal to win! In the end, she lost her battle, but had such a wonderful support group of friends and family. From what my Aunt Phyl has told me, Hospice was such a wonderful group there and kept her free from pain. Her employer paid her full salary the whole time she was sick and was very supportive of her. I still grieve for my cousin, my friend.

My Dad had bladder cancer back in 1990, but he was also a cancer survivor. He was 5 years cancer free when he passed from congestive heart failure in 1995. He has always been my Hero for many reasons.


This picture is of my Aunt Phyllis, Aunt Wilma and my cousin, Chris. This was about 6 months after Chris's diagnosis.

Bless you, Venita, for doing this. You are also my Hero. I say a prayer for you everyday. May you continue to be a *survivor* forever!


Heather_Mr.Tubs's Gradma and Mom

My grandma Marian (mom's mom) had metastatic breast cancer. She had a double mastectomy. She died of lung cancer Dec. 6, 1989. My grandmother played an important and influential parental role in my childhood. We lived with my grandparents for a time after my parent's divorce. Growing up we played with her wigs and she was never ashamed of her scars. She showed us her bandages and staples after her mastectomy. She was a fighter. That loss was one of *the* defining moments in my life. I was 12 and it felt like I lost a parent. In my short time with her, she was an example of strength and courage. I will never forget those important painful lessons and she will always be my hero.

My mom was diagnosed with Stage 2 Uterine Cancer Dec. 22, 2005. She had a hysterectomy in Jan. 2006. She's been cancer free for going on 2 years. I'm fortunate to be from a family of strong women. My mother has taught me strength, independence and perseverance.

Marialyce and Sparky's (feathersby's) Family and Friends

My grandmother, Alice, who died of a sarcoma when I was six.

My Dad, Bernie, diagnosed with colon cancer in 1968 and died from a recurrence in 2000. His younger brother, my Uncle Eddie died of colon cancer also.

My Aunt Dot survived breast cancer over 10 years before dying from it in 1971.

My only female cousin underwent double mastectomy in her 30's, have lost contact with her.

One of my nursing school classmates and a good friend died of Lung cancer last year.

My friend Sue, who underwent double mastectomy 2 weeks ago, currently healing and planning other therapies.

Carol-Charlie's Husband Tom (her Caregiver)

My wonderful Tom, who has never complained, has done everything from change bandages, to litter boxes. He learned to care for Charlie the day I was diagnosed back in January of 06... he's taken over the care of feeding and litterbox changing. He cleans house (hired a cleaning lady once a month too) does 90% of the cooking and baking...

He tells me I'm beautiful... when I'm sitting there bald, and fat and feeling sorry for him. When this man looked at me and said..."For better or for worse... In sickness and in health..." He meant every word... and absolutely no complaints.

He'll take me for rides.. (buys me an icecream cone and off we go...) It gets me out... without worry of germs... He takes me shopping, and lets me 'save him money, buying on sale'... He buys a new watch for me, and puts it in a McDonalds bag.... Good thing I didn't eat it..

He holds my hand when I'm scared, and we start planning our trips to meet you all next year when I'm better... (been two years of saying next year... but)

We're going to New England .. Catnip Cottage, Oregon... Chicago.. want to meet the Tennesee girls (and Smokey).. and on and on... we'll be retired and heck... we can drive... my feeling should come back in my feet... We love to drive and sing the oldies... you know real oldies... 50's, 60's, and 70's... Thanks for letting me talk about Tom...

Robin (from Carol-Charlie)

Let's not forget Robin. She fought breast cancer, then had a brain tumor removed and never really even slowed down in helping us on FDMB to help others. She was a voice of strength for me when I was diagnosed, and sanity, when I thought I'd gone brain dead.. (Chemo Brain)... heard it first from our Robin. She remains a great gift to this board.

Then of course there is you Venita... another hero of mine... sadly there are a few of us on FDMB that are fighting more than feline diabetes.

Lets all remember to pray for healing (please/thank you) for all of us who still battle this very scary disease.

Thank you all!!!! I know prayer works... I am still here.

Teresa and Olivia's Father

I can't read these without bawling my eyes out. My father, Jack Hale, passed away on January 12th, 2004, at the age of 68. He died from metastatic thyroid cancer, which he fought for 23 years. He had part of his jaw removed, his hip replaced, and many other surgeries, fighting every day he could to see his granddaughters for as long as possible. He is my hero, along with all of the cancer fighters on this board.

Karen and Splash's Dad

My dad....Jim...diagnosed this past June with esophageal cancer. He taught me to be a strong independent woman so whatever life handed me I would be able to deal with. He has tried to protect me so much as he has ventured through this new labyrinth of treatments and decisions, but I think he has finally realized that it is our turn to take care of him. He is only 68 years young.

On top of this, he is a 40 year bladder cancer survivor. In 1967 the only treatment option was surgery. Chemotherapy was still experimental where it was being used. But his early detection saved his life.....so he could be in mine. (Mom was pregnant with me when he was diagnosed back then)

Damn, My Parathyroid is Normal

PTH (parathyroid hormone) tested at 28 (range 15-65). So it's not hyperparathyroidism.

We are back to stumped.

Onc wants me to see an endochronologist. Thankfully I found one in the same health system as most of my other docs who takes my insurance. I will see him in late November.

Anyone have any ideas? Elevated blood calcium. Bone scan clear. PTH normal. What could be causing this??

How Cool is This??

A Buddy Map. Please please do add yourself. Let's see where all our friends are all over the world (although yes most are in the US). You can add a picture of yourself. You can put in your email addy, but it seems to me that doesn't display. It is just used, as far as I know, to send you an email thank you for signing up. Don't put it in if you don't want to; I can't guarantee it won't display.

The first dot is us.