Wednesday, September 20, 2006

Jim's Getting Out of Dodge

As Deb would say.

St. Francis turned Jim down. His condition is not acute enough for their program. I knew that he would not fit with SF when I visited the facility this morning. SF rehab is working with patients coming out of ICU on ventilators or recovering from strokes to give them as much of their lives back as they can before they are sent to an outside setting, be it home, assisted living, nursing home, or whatever.

I didn't tell Jim about not thinking SF would be a fit for him. When I got to Shipley, the SF nurse was there reviewing Jim's chart. She left a message with his room nurse before she left (without speaking to Jim) that he was not a fit.

Jim started to take another dive into anger/depression when I said, basically: I made you a promise you would not be at Shipley at week's end, and you won't be. If SF won't take you, you are coming home and you are the only one who can stop it. I went to tell the social worker, but she and the head of nursing are out at training for 2 days. I told the head of PT, and he said he would inform those who need to know to make this happen. When I got back to Jim, he was looking even more anxious. I asked him what the problem was. He said he didn't think I would keep my promise, and that he is scared he might cause me problems or get hurt if he comes home. (Why didn't the boy listen to this before now?) I told him that until the discharge, he could change his mind, but that after that, he's in my care, come what may. (But I hope he knows that I will put his safety first.)

I started working this afternoon on trying to find a certified nurse assistance to watch Jim for 5 hours next Thursday when I have appointments with Dr. Cutter and with the radiation oncologist. I also started working on a cancer grant to pay for this "respite care."

We'll also need to work through Shipley to get an RN in for weekly blood draws and folks in for physical and occupational therapy. If ordered by the DR, those will be paid for by Medicare for an "appropriate" amount of time.

I went to Target to stock up on some needed "home patient" supplies. I also called one of our friends to move a bureau from a bedroom into the family room where Jim will be staying. I have to start setting his familyroom/bedroom up tonight.

Thanks to all who have provided such strong shoulders the last couple of weeks: here, email, FDMB PM, in person, and on the phone. Lordy, I really know I could do this if I had you all camping out in the backyard. Kind of like that Singular Network commercial, where the pack of people follow the cell phone user around? Absent that, we just have to trust that Jim and I can do it with your encouragement!!

3 comments:

DebandGiz said...

If Giz and I were able to "run away" right now, dearest Venita, we'd be telling you to look out your back window this very minute!

Well, I would...

Giz would be knocking at your front door wanting the asylum that comes with carpeting, upholstery, a fridge for her juices and yogurt, and a plug for her George Foreman grill... She might also provide you with a menu that might be meaningless -- or not... I'd be happy with a toasted sandwich...

Get Jim's homecare ducks lined up! I mean that! Not just for your doctor day of being poked and prodded -- for you! If Medicare doesn't kick in, remember income tax deductions!

Was there any particular aide at Shipley who seemed extra attentive/compassionate? If so, find out if they moonlight... If not, find a home care company that might just split that four-hour/day minimum... If they won't split it, have them send someone over whilst you nap... Yes, dearest Venita, gather your furries and nap...

Although this should probably be mentioned in your previous response about stolen souls and spirits staring at walls and hands, will share it with you here, if that's okay...

Remember Turbo? Of course you do... Well, Turbo's mom, Muriel, went to visit my mom in the hellish rehab place that caused her anorexia... (Truth be told? It wasn't hellish at all... Each and every caregiver was a true smiler... With genuine smiles! Therefore, genuinely special!) Upon coming to the front door, Muriel was greeted by two lovely, perky ladies in wheel chairs... When she opened the door, they said their greetings, chatted a bit, and apparently then took off! Yup, they put their wheel chairs in rev mode and took off down the driveway! Muriel swears to this day, she thought they were visiting another patient... She didn't know they were patients themselves...

They almost made it to the highway, before being safely escorted back to their rooms... No doubt to plan their next get-away...

Sometimes the spirit still moves!

Proper home care along with your sheer stubborn-ness seems do-able, dearest Venita... Then again, you've long since defied anything I could ever imagine... Yes, you're that awesome! Yes, you're that inspirational! Yes, you're that stubborn!

Gosh... I am so humbled to even be allowed to read your journey, much less respond to it... Thank you for you! And thank you for this little window that allows me to thank you for you!

All that said, and truly meant, line up Jim's homecare ducks... Promise me you will, okay? Promise us all you will for Jim... Promise us all you will for you...

Much love, and perhaps more healing, hopeful hugs than could ever exist,
Deb & Giz, who chose to not quite max out her meter today, so is feeling a little uncomfortable and restless until mom can call her vet and suggest/urge another round of amoxicillin is probably in order...

PS: Have we had a good long sigh today?

Alice said...

I also wish I could be there. All we can do is send our love and hugs. YOu are the stongest and bravest woman I know.

Alice

julie said...

please don't push yourself too hard V.....insist on home care..if they fight you, don't give up...call your insurance company and have them assign a social worker to Jim from them to help you....lots of hugs!!!!